I spent the night again last night - I feel better when I am here. He had a good night, and his urine output has continued to increase. His creatinine also improved slightly, to 1.7. He is still retaining a lot of fluid, though, and his weight is up by almost 2 pounds in the past five days. And I don't think that is because of the 15 oz of breast milk that he was getting.
Today he is dropping his O2 levels more than in the past few days. They have had to increase his oxygen level on the ventilator. If he stays calm and sleeps, he does OK, but any stimulation drops his levels. He just doesn't have any reserves. They have increased his fentanyl drip trying to keep him more sedated, and right now he seems more comfortable again.
Every day brings a new worry. One day I am excited about his seemingly improving kidney function, and the next I am worried about his difficulty keeping up his O2 levels. It is so very stressful. I am just so worried that they won't be able to keep him stable enough with all this extra fluid in his body to make it until his kidneys really start working again. Hopefully, tonight will be calmer.
If anybody is interested, and I know there are a few photographers and creative people out there following this blog, my sister created a link at the top of the blog to send in photos for Ben. Essentially she is collecting a gallery of prayers, thoughts, and support for Ben. If interested, follow the link or go to her blog (Boeker Family Blog) and e-mail her some creative photos. If you're not so good at those things (like me!) then feel free to view it and see all the pics that friends and family have sent, and say a little prayer for Benjamin!
Today he is dropping his O2 levels more than in the past few days. They have had to increase his oxygen level on the ventilator. If he stays calm and sleeps, he does OK, but any stimulation drops his levels. He just doesn't have any reserves. They have increased his fentanyl drip trying to keep him more sedated, and right now he seems more comfortable again.
Every day brings a new worry. One day I am excited about his seemingly improving kidney function, and the next I am worried about his difficulty keeping up his O2 levels. It is so very stressful. I am just so worried that they won't be able to keep him stable enough with all this extra fluid in his body to make it until his kidneys really start working again. Hopefully, tonight will be calmer.
If anybody is interested, and I know there are a few photographers and creative people out there following this blog, my sister created a link at the top of the blog to send in photos for Ben. Essentially she is collecting a gallery of prayers, thoughts, and support for Ben. If interested, follow the link or go to her blog (Boeker Family Blog) and e-mail her some creative photos. If you're not so good at those things (like me!) then feel free to view it and see all the pics that friends and family have sent, and say a little prayer for Benjamin!
Praying for miracles... lots of them!!
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